We conducted 20 in-depth, semistructured interviews through videoconference from March 2020 to May 2021. Informed consent was obtained from participants before interviews. IRB approval included access to medical records for demographic data. The Institutional Review Board at Washington University in St. Interviews were conducted when the infants had been home from the hospital for 6 to 18 months (median 11 months) to gain perspectives of mothers who experienced prolonged hospitalization of infant in the NICU and had fully transitioned from hospital to home. We attempted to contact 134 mothers of those, 20 agreed and 29 declined to participate in the study, and the rest could not be reached. We recruited by using snowball sampling in which mothers referred other mothers and by calling mothers based on demographic data from lists of infants discharged from the NICU. We sought to obtain a diverse range of perspectives and therefore recruited mothers with varying ages, education levels, socioeconomic statuses, and family structures. Recruitment occurred over a 1 year period between April 2020 and April 2021. In this NICU, ∼30% of patients’ families identify as Black. Participant self-identification as Black was an inclusion criteria because race and ethnicity are social constructs, rather than genetic or biologic categories. Louis, MO) for at least 4 weeks between 20. We recruited mothers ≥18 years old by phone after discharge, who self-identified as Black or African American, spoke English, gave birth to their infants at ≤32 weeks’ gestation, and had infants hospitalized in a single, urban, level 4 NICU in the United States (St.
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